Neuro placement. We went to a consultant meeting on Friday morning at Shenton Park, where they were presenting a patient who had suffered from 'locked in' syndrome - a pons stroke. This, in case you are like me and couldn't quite remember what this means is - when the cortex remains unchanged however the pons has been compromised so the person cannot move while retaining cognition. Some can only blink to communicate as with the presenting patient. This same patient 8 months later was sitting independently, was able to speak and be understood, uses an electric wheelchair, can type using index finger is able to stand for a few seconds without support and has started facilitated gait training - she is still progressing well.
There are two other cases of locked in syndrome that I have seen (not treated) over the last few weeks. Both went at least a year without physio intervention after their strokes. They now receive weekly physio treatments however it appears to be more for maintenance - one has passive stretches, tilt table and airsplints, is able to sit independently in a wheelchair, is dysarthric however can be understood as with the previous patient.
The second also is in a wheelchair but with greater head and trunk support, is unable to speak and uses a communication board to speak. More stability exercises are used with this patient in attempt to gain independent trunk and head control, passive stretches and tilt table again are used.
The point that was made on Friday to the consultants was that early physio intervention for these patients is imperative to their functional outcome. In return note that 'locked in' syndrome is now a blanket statement, not all will have the same recovery available due to the extent of damage to the pons.
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3 comments:
What an interesting clinical scenario! I don't think i've ever heard a better advertisement for physiotherapy intervention! It really highlights the crucial role we play, and although changes may be small and gains slow they are there, and the end result is life changing for the patient. A good reason to persevere with all this study...!
Hi Jill,
Wow..this topic of your blog is really interesting. I have heard of this syndrome but have never seen it before. It must have been great to have the opportunity to see and trully comprehend the presentation. Thanx for the info re early physio intervention for such condition. Just out of curiosity, did you know the reason why those 2 pts weren't refer for physio?
Hi Jill,
An interesting post! I have also treated a patient with "locked in syndrome" and i think it was one of the toughest patients i have ever had. My patient was unfortunately not doing as well as the one you described, and my role was more in a maintenance capacity. I am glad that physio has played such a positive role in your patient and i couldn't agree more regarding rehab for functional tasks. Even though passive stretches and other maintenance treatments may not seem very effective, in some cases without it they may not be able to operate an electric wheelchair or use a key board to communicate. Keep up the good work!
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